Participatory Research Toolkit

 
 

Key References

ARTICLES:

  • Jagosh J, Macaulay AC, Pluye P, Salsberg J, Bush PL, Henderson J, Sirett E, Wong G, Cargo M, Herbert CP, Seifer SD, Green LW, Greenhalgh T. (2012) Uncovering the Benefits of Participatory Research: Implications of a Realist Review for Health Research and Practice. Milbank Quarterly, 90(2). http://www.ncbi.nlm.nih.gov/pubmed/22709390
  • Macaulay, MC, Commanda, LE, Freeman, WL, Gibson, N, McCabe, ML, Robbins, CM, Twohig , PL (1999) Participatory research maximises community and lay involvement. BMJ 319:774-778. http://www.bmj.com/cgi/reprint/319/7212/774
  • Green, Lawrence W. (2008) Making research relevant: if it is an evidence-based practice, where's the practice-based evidence?. Fam Pract 25 (suppl_1): i20-i24.. https://doi.org/10.1093/fampra/cmn055

SYSTEMATIC REVIEW:

  • Viswanathan M, Ammerman A, Eng E, Gartlehner G, Lohr KN, Griffith D, Rhodes S, Samuel-Hodge C, Maty S, Lux, L, Webb L, Sutton SF, Swinson T, Jackman A, Whitener L (2004) Community-Based Participatory Research: Assessing the Evidence. Evidence Report/Technology Assessment No. 99 (Prepared by RTI-University of North Carolina Evidence-based Practice Center under Contract No. 290-02-0016). AHRQ Publication 04-E022-2. Rockville, MD: Agency for Healthcare Research and Quality. http://www.ahcpr.gov/downloads/pub/evidence/pdf/cbpr/cbpr.pdf
  • Jagosh J, Macaulay AC, Pluye P, Salsberg J, Bush PL, Henderson J, Sirett E, Wong G, Cargo M, Herbert CP, Seifer SD, Green LW, Greenhalgh T. (2012) Uncovering the Benefits of Participatory Research: Implications of a Realist Review for Health Research and Practice. Milbank Quarterly, 90(2). http://www.ncbi.nlm.nih.gov/pubmed/22709390

BOOKS:

  • Israel BA, Eng E, Schultz AJ, Parker EA (Eds) (2005) Methods in Community-Based Participatory Research for Health. San Francisco: Jossey-Bass Publishers
  • Minkler M, Wallerstein N (eds.) (2008) Community-Based Participatory Research for Health (2nd ed). San Francisco: Jossey-Bass Publishers

WEB LINKS:

  • CIHR KT Tutorials: A Guide to Researcher and Knowledge-User Collaboration in Health Research
    http://www.learning.cihr-irsc.gc.ca/course/view.php?id=3
    These learning modules were developed by PRAM for CIHR. They are a guide to all aspects of taking a participatory approach to health research. Includes references and case studies.
  • Community-Campus Partnerships for Health (CCPH)
    http://depts.washington.edu/ccph/index.html
    Community Campus Partnerships for Health (CCPH) is a nonprofit organization that promotes health (broadly defined) through partnerships between communities and higher educational institutions. Founded in 1996, we are a growing network of over 1,300 communities and campuses across North America and increasingly the world that are collaborating to promote health through service learning, community based participatory research, broad based coalitions and other partnership strategies

Other links and references:

  • Kahnawake Schools Diabetes Prevention Project (KSDPP): Code of Research Ethics
    http://www.ksdpp.org/elder/code_ethics.html
    This Code of Research Ethics sets out the working guidelines for this community-university partnership. It is one of the bases on which the CIHR Guidelines for Health Research Involving Aboriginal People is based
  • Glass, KC and Kaufert, J. Research Ethics Review and Aboriginal Community Values: Can the Two Be Reconciled? Journal of Empirical Research on Human Research Ethics, June 2007.

  • Community Health Scholars Program
    http://www.sph.umich.edu/chsp/program/index.shtml
    The goal of the Community Health Scholars program (CHSP) is to increase the number of faculty at health professional schools, with an emphasis on schools of public health, who possess the capacity to carry out community-based participatory research* and teaching and who understand determinants of community health and how to build the capacity of communities, health-related agencies and academic centers to function as equal partners in community-based research, service and education
  • Wells, K; Miranda, J.; Bruce, M., Alegria, M., Wallerstein, N. (2004), Bridging Community Intervention and Mental Health Services Research, American Journal of Psychiatry, 161(6) : 955-963

  • M Stevenson JM and Cifuentes M. (2006) Recent Publications Regarding Community Based Participatory Research (CBPR): Annotated Bibliography
    http://www.fmdrl.org/index.cfm?event=c.beginBrowseD&clearSelections=1&criteria=Stevenson#879
    NOTE: This bibliography is a useful tool for those wishing to get an overview of some of the key issues in CBPR. However, it is limited to items indexed in Medline and the authors limited themselves to the search term _community-based participatory research_, which therefore precludes results where this phrasing was not to be found. Authors also did not adequately justify their rationale for selecting the subset of results (21 items) presented in the bibliography

 

 
 
 
 
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